Shielding with a rare disease: Emma and Hugh

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17 July 2020

Emma shares her family's experience of shielding and moving forwards

https://youtu.be/OA34EQ-rAGU

 

Hugh is 10 and has a rare genetic condition called FOXG1 syndrome. His mum Emma shares their experience so far of Covid-19 and what’s next for their family.

To share your experiences with us please email: covid-19@geneticalliance.org.uk.


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