Weekly update – England

A brief update from Nick, the Director of Policy for Genetic Alliance UK about recent developments.

• The Government have updated guidance for anyone clinically vulnerable or clinically extremely vulnerable.
• The British Society of Genetic Medicine have launched a tool to help assess your risk in relation to Covid-19.
• There is updated guidance from the Royal Society of Paediatrics and Child Medicine on the newly revised categories of children who need to shield.
• We have a new blog post exploring the positives and negatives of telemedicine for the genetic, rare and undiagnosed community.
• Our new survey for CEOs and leaders of organisations supporting people and families with genetic, rare and undiagnosed genetic conditions is live, we will be discussing the preliminary results at our community check-in on Tuesday at 10am.
• We will also be talking about using Small Charities Week as a platform to celebrate and promote the vital role of organisations supporting the genetic, rare and undiagnosed community during the Covid-19 crisis. Email Covid-19@geneticalliance.org.uk for joining instructions.

If you have questions or experiences you would like to share, please email nick@geneticalliance.org.uk.