Latest news and updates

Genetic Alliance UK recommends that people with genetic, rare and undiagnosed conditions be prioritised for Covid-19 vaccine. 

Clare talks about the decisions her family has to make to keep their extremely clinically vulnerable son safe during the new lockdown.

One parent's thoughts on how Covid-19 has affected her family.

Jane Edwards tells us what shielding has been like for her and her family, and how she is adapting to slowly coming out of shielding.

How living with a rare condition has been affected by the pandemic.

Update on the mandatory use of face coverings across the UK.

Join our interactive session for practical advice to cope with stress, anxiety and promote emotional wellbeing.

Join our online session on the future of shielding.