New Europe-wide rare disease Covid-19 survey launches
Genetic Alliance UK’s European umbrella body, Eurordis have launched a survey to better understand the impacts of Covid-19 on the rare disease community. The survey will take around 15 minutes to complete and includes questions relating to how the Covid-19 pandemic is affecting patients’ care, social care, employment situation and mental health.
If you respond, Eurordis will share the overall results of the survey with you and communicate them (without communicating your individual responses) to decision makers. They will also share the UK-specific overall results of the survey with Genetic Alliance UK (without communicating your individual responses).
Your contact details and any written records of your responses during the study will be kept in secure storage which only the Eurordis research team can access.
To take part in this survey, please follow this link.