Researchers are looking for parents of children aged 0-16 with a rare genetic and/or neurodevelopmental disorder to help understand the impact of Covid-19 on the wellbeing of their family.
The CoIN Study will track changes in wellbeing during and after the pandemic in order to understand the specific challenges facing families of children with rare disorders. Your responses will be rapidly fed back to the team at Genetic Alliance UK and used to identify and provide better ways of supporting you both now and in the future.
The survey will take up to 40 minutes to complete the first time you do it and about 15 minutes to complete thereafter. We will ask you to complete the survey once per month until children are back in their usual education.