Wednesday 8 July 2020, 1:00-2:00pm
Join Genetic Alliance UK, Highland Children’s Forum and CHIP+ for a virtual get together all about rare, genetic and undiagnosed conditions.
This informal get together will provide families living in Highland with an opportunity:
- to meet other families in Highland living with a rare, genetic or undiagnosed condition
- to discuss the current Covid-19 situation and the impact it has had on your family
- to ask questions about information, support and services available in Highland and across Scotland
- to hear from local support organisations about the services the provide
This one-hour session is free to attend and all attendees will receive a copy of the Rare Resources Toolkit, a guide for families with a child or young person with a rare, genetic and undiagnosed condition.